Sunday, February 13, 2011

Building Strength Without Muscle

It has been over a year since I have updated my blog, and I have documented the thousands of reasons why. I was looking over past facebook posts and realized the majority of them were all about the terrible life-threatening events of this past year. I wanted to save these experiences so I can look back and think how lucky I am. It's been hard, but along with the bad, a lot of good things came out of it, too.

July 13th, 2010

I woke up around 7 AM to take a shower before having to leave for my internship. As usual, I went to the restroom before hoping in the shower. All of the sudden I noticed blood coming out of me. I was a little shocked at first, although most women would think this is the start of their monthly cycle, for me this was a strange event because I was 6 months post-op from a hysterectomy and haven't seen a spot of blood since. Trying to stay calm, I stuff what I could in my pants, since I no longer owned any sort of feminine products, I quickly got ready to go to work. Luckily, my internship was at my OB/GYN, so it was the perfect setting for this type of complication. When I got there, I found out that my doctor was out of town, so I notified his nurse practitioner of my situation. She was able to take a look and found that the blood was coming from a laceration on the top of my vaginal cuff. Not knowing how this could have happened, I was put on estrogen cream and was told to have it looked at in a few days. The entire day seemed like a huge nightmare. I was hoping my gynecological problems were over after having a hysterectomy.

July 14th, 2010

As usual, I woke up to get ready to work. The bleeding continued, but nothing worse. I made my doctor aware of what was going on. Of course, he was absolutely mortified to hear that I was having more gynecological issues. We decided to keep our eye on the situation, hoping it would heal on its' own.

July 15th, 2010

I still remember this day like it is still happening!! This was my first post about my medical issue that continues on for almost 6 months.

"My day started at 2 AM when I started bleeding to death, literally. My dr told me to meet him at the ER. My pulse was at 140 and my BP dropped to 30/20. I turned white, passed out, had a seizure, and then turned blue. My doc was able locally fix me up. My BP and hematocrit are still low, but hopefully I will be home in the morning. I have the worse luck, it's getting ridiculous."
July 16th, 2010

"Yeah! I returned home from the hospital earlier today. I was doing much better until I passed out in my living room about an hour ago. Now I am stuck with a massive headache. I guess my body is still feeling weak, hopefully I can get some sleep tonight. Thanks for all your love and prayers!"

"Feeling very overwhelmed! My house looks like a freaking murder scene! Blood on the mattress, blood on the walls, blood on the cabinets, blood all over the floor, blood-soaked towels, etc. What is the best way to clean up blood, especially on my bed, aaahhh, help??"
July 20th, 2010

"I was back in the ER yesterday morning:( My doc has put me on strict bedrest for 2 weeks. He said he doesn't want to see me at soccer, Costco, or Harmons. What the heck am I supposed to do all day?"

July 27th, 2010

"I am back in the hospital! I have an infection and my hematocrit keeps dropping. If anyone wants to come visit me, feel free, I am so bored. I miss my kids so much!"

"Looks like I am getting a blood transfusion. I am hoping it helps me feel better. Thank you for all your prayers! I have the best friends and family ever!"
July 30th, 2010

"It's so nice to be out of the hospital! I had to have a PICC line put in and I have to go to IV therapy every day and continue bedrest. I am feeling a lot better since my transfusion, so hopefully things will get better from here on out. Thank you to everyone that has been helping me and those that came to visit in the hospital, I really appreciate it;)"
August 9th, 2010

"I am dreading the doctor's appointment I have tomorrow:("
August 10th, 2010

"It's not good to be your doctor's #1 concern:( Continued bedrest, more labs, referral for hematologist, back to doctor in 2 weeks.......will it ever end?"
August 14th, 2010

"These past few weeks have been really scary! Thursday I began hemorrhaging severely again. I could not make it stop, so I rushed straight to the ER. I don't think I have ever seen so much blood gushing out of a body. My ER room looked like a murder scene. My Dr worked on me for a while and then told me he is not able to stop the bleeding. At this point, I was preparing myself to bleed until I was dead."


"My Dr decided to rush me into the OR for emergency surgery. I was
freaking out, cuz my husband was at work and I nearly die every time I
have anesthesia. The pain meds made me say some outrageous comments to
my doc, which I am embarrassed to repeat, only funny part of my day. I
had more seizures and it took me 12 hours to wake up from surgery."
I remember my doctor working on me for hours, when he finally paused, looked up at me, and told me he couldn't get the bleeding to stop. The only thought that passed through my mind was, "So, I'm just going to bleed to death". I was preparing myself for the worse. He continued to work on me for a minute, then he said we need to get to the OR STAT. I was so scared, the entire room was splattered with blood, it looked like a murder scene.

"He was able to get the bleeding under control, but still clueless about
what's going on with my body. He is thinking about shipping me to
University of Utah. I am scared, please keep me in your prayers. I don't think my body can take it anymore:("

"4 weeks of hemorrhaging+ 3 ER visits+1 ambulance ride+3 hospital stays+2 blood transfusions+ 1 emergency surgery= 1 messed up month"
August 19th

"I had my weekly doctor's appointment today, haha, no surprise there. Not much has changed since my emergency surgery last week. My BP and pulse skyrocketed. My doc is trying to set me up with a doc at the University of Utah, so my husband and I might be making our way up north very shortly. You know it's bad when you have to drive 5 hours for treatment:("

"This might sound really awful, but I am so frustrated with not knowing, that I almost wish I was diagnosed with a horrible disease. At least I would be able to move forward with my life. I am loosing blood and my patience:("

August 23rd, 2010

"WTHeck! I'm back in the hospital hemorrhaging to death. Went to the ER this morning white as a ghost and then went unconcious. Got transferred by ambulance with lights and siren cuz my vitals were so bad. Another transfusion, more tests, and probably being sent up north. Y oh y does this never end??"

August 24th, 2010

"Happy bday to my awesome husband who is always by my side, which lately means the side of my hospital bed! I feel so bad that I am stuck in the hospital on his bday:( I love you Brad! Thanks for loving me through health and especially sickness, I couldn't go through this scary time by myself. XOXO"
August 25th, 2010

"It is 6:15 AM at Dixie Regional Hospital and I haven't been able to fall asleep yet. Maybe my unexcitement for this day is showing. Just so everyone is updated, sometime today I am being transferred by ambulance to the U in SLC. I am not sure what will happen there or how long I will be staying, but I am sure going to miss my kids, and I don't even get to see them before I leave;("

"There has been a disappointing change of plans. I am no longer being transported to the U of U, for insurance reasons they will not see me. We thought we were getting closer to a diagnosis, but now we are back where we started. I am basically being discharged from the hospital, and sent home to wait for the next ER visit where I might possibly bleed to death. My doc, my family, and I are not sitting happy right now:("
August 29, 2010

"This day started out all wrong:( After being up with a fever the first half of the night, I was sleeping peacefully, when my Dr called me at 7:30 AM. I wasn't even awake, and he was telling me to meet him at his office right then. Looks like I have another infection, hopefully my antibiotics will start kicking in soon. It's just one thing after another!"
August 30th, 2010

"Good news! Got a call from my doc this morning and he was able to pull some strings 2 get me an appointment at the U of U for tomorrow morning. He told me to pack my bags, cuz the next appt isn't for 3 months. So here I am in my car driving up north with my hubby. Wish me luck, this might be my opportunity to finally get better:)"
September 13, 2010

"Happy Anniversary to me and my hubby of 8 years!!! This is a bad day for my anniversary, cuz I have a procedure tomorrow, which means I can't eat anything today. I guess we will have to celebrate a different day. I love you Brad!"
September 15, 2010

"UPDATE: A bit of good news, my results from yesterday came back ok, so no surgery for that problem, yeah! The bad news is that I had to make another trip to the ER tonight, because I began hemorrhaging again:( My doctor and I have a new system where he packs me tightly in the ER, except I got to be tortured twice this time, cuz the first one fell out. I am so scared that this will end with a major surgery:("
September 16, 2010

"Ever since my doctor's appointment today I have been in excruciating pain and I have a 102 fever! So, not excited for my 9 AM appointment in the morning....can the pain get any worse, I guess I will see after my appointment:("
September 18th, 2010

"My doctor wants me to sleep at the hospital tonight........not my idea of a fun Saturday night:("

"Just found out I have to have another blood transfusion, the 4th one in the past 2 months. Also, my WBC is high, looks like another infection:( Ahhhhh, hospitals suck!"
September 21, 2010

"It is 5 AM and I have been in excruciating pain ever since I went to my doctors office at 8 PM. I have to go back at 8 AM, I don't think I can make it until then:("

"I have lost count of how many times I have been to the doctors in the past few days. Now we are on our way up north to see a specialist again. We are hoping to get a plan and surgery set, so I can finally be healed. Please keep us in your prayers tomorrow. My body is getting so close to giving up, we need some sort of miracle right now."
September 28th, 2010

"It is 4 AM, I bet no one can guess where I am right now! Go ahead, take a guess?"
September 29, 2010

"I woke up here in the hospital at 2:30 AM freezing and they tell me I have a fever of over 102. Why oh why does it continue to get more and more miserable?"
October 2nd, 2010

"I don't even want to post on FB anymore. I never have anything but bad news! There has been nothing but trauma every day this week....I can't even count how many times a day I have to call my doctor. I am about to put up a white flag!!"
October 4th, 2010

"This has been a really bad week. I was admitted Tuesday thru Thursday and had 2 transfusions. Then I got admitted on Saturday indefinitely until I get better. I had transfusion number 7. I around 5 AM Sunday morning my doctor saw me go code blue. Luckily, they were able to revive me. When I am stable, I will probably be shipped up north to get help. I miss my family! It is so scary thinking I almost didn't make it:("
I don't think I will ever get this morning out of my head! I just remember I kept bleeding and bleeding. I looked my doctor in the eyes and asked, "Tell me the truth! Am I going to bleed to death?" He had a scared, but determined look on his face. "I won't let that happened!" The next thing I remember is being surrounded by 20 people in my hospital room. I guess I coded and they had to bring me back. I was given Percocet, IV Benedryl, Ambien, and Dilaudid, all within 20 minutes. I think the nurse got an earful. I remember looking at my doctor and seeing how upset he was. That might have been the day he snapped!

"*Update* After coding at the hospital, some major decisions have been made. We are on our way up north right now. My doctor has scheduled me to have surgery on Wed at the U of U. With my past history and current condition, this surgery could lead to serious complications. With this being such a life-threatening situation, it is our best option. I am really scared! Please keep us in your prayers!"
October 5th, 2010

"I spent hours at the LDS hospital last night getting some precautionary treatment to last me through the night. Scary ER, I suggest never going there. I just found out my surgery in the morning is at the butt-crack of dawn, 6:30 AM. Also, it is going to be at the LDS hospital, not U of U. Soooo not excited!!"

"My surgery was at U of U, then it got changed to LDS hospital. We just received a new insurance plan that is not accepted at LDS. So, my surgery is back at the U of U hospital at 7 AM. Yikes!"

October 6, 2010

"It's almost time to go under the knife. Here comes the tachycardia!"
October 10, 2010

"This has been the first day in 3 months that I have spent at home without worrying about having to rush to the ER:)"
October 16, 2010

"I am so NOT excited to go up north again on Monday! My surgery on Tuesday better be the last of this crap:("
October 17th, 2010

"I was able to go to church for the first time in about 4 months. It felt really good to be a part of my ward that has helped me so much. Too bad I have to have surgery this week....I was starting to like feeling somewhat normal:("
October 18th, 2010

"We have arrived in Salt Lake once again! I have to be at my surgery at 6 AM. If you would like an update, text Brad at 435-668-7196. I think a lot of us will be very happy when this is over; me, friends and family, and doctors:)"
October 19, 2010

"What's worse than having surgery? How about having surgery at the butt-crack of dawn! :("

"*INCREDIBLE NEWS* My surgery went 100% better than expected! Everything looked so wonderful, that I didn't require any anesthesia. We have finally found the solution to my anesthesia issues, just don't give me any. I should be completely healed in 6-8 weeks. I am thrilled that this nightmare is finally over!"
October 27, 2010

"I think my immune system has been compromised:("

October 31, 2010

"I got to spend hours at Instacare today, because I woke up with severe pain on the left side of my face from this darn sinus infection. Now, all of the sudden, I have a UTI. You have got to be kidding me!!"
November 18, 2010

This was the last time I was admitted to the hospital after being rushed into the ER and passing out twice.

November 21, 2010

"I am so ready to start a new week! My sternum feels broken and all of my veins are sore. When you think things can't get any worse, they somehow do. I sure have a lot to be thankful for this Thanksgiving:)"
December 9th, 2010

"It has been 3 weeks since I've had any hospital visits, yay! It is so nice to have more lives than a cat!"
So many bad memories, but at least it ended on a good note.....cross my fingers!

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